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WebThe DICE EDS and HSD Global Registry is an important tool in collaborative research, which allows members of the EDS and HSD community to complete surveys and share medical information, to assist with research into the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). The Registry will help researchers throughout … WebEhlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the connective tissues. Connective tissues are proteins, such as collagen, that provide elasticity and support to the joints, blood vessels, and skin. Most children with EDS have hypermobile joints that are prone to full or partial dislocation. healthcare professionals role in safeguarding
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WebThe term Ehlers–Danlos syndrome (EDS) encompasses a group of inherited connective tissue disorders. The manifestations of EDS can be seen in skin, joints, blood vessels and internal organs and vary from mild to severe and life threatening. Each subtype is a separate and different condition. The genetic basis of many subtypes has now been elucidated, … WebEhlers-Danlos syndrome (EDS) is a disease that weakens the connective tissues of your body. These are things like tendons and ligaments that hold parts of your body together. EDS can make your ... healthcare professionals role in compliance